|
Sign In to gain access to subscriptions and/or personal tools.
|
Adolescent-Evaluated Quality of Life: A Longitudinal Study
Peggy Ward-Smith, PhD, RN
University of Missouri-Kansas City School of Nursing, Kansas City, Missouri, wardsmithp{at}umkc.edu.
Becki McCaskie, LMSW, LCSW
Children's Mercy Hospitals & Clinics, Kansas City, Missouri
Shannon Rhoton, BSN, RN
University of Missouri-Kansas City School of Nursing, Kansas City, Missouri
Opportunities for adolescents with cancer to interact with each other are few. This project provided a weekend retreat for adolescents with cancer and obtained longitudinal self-evaluated quality of life data. Data were collected using the Adolescent Quality of Life instrument, which is a 16-item Likertscaled survey that assesses quality of life. Twenty-two adolescents attended the weekend, and 17 participated in the study. Evaluations of the weekend retreat were positive, with "making friends" and "meeting others like me" the most frequent comments. Data from the Adolescent Quality of Life instrument revealed that for this population, quality of life was unchanged directly after the weekend and was statistically worse 1 month later. Enrollment methods skewed study participation toward individuals receiving treatment, which may explain these results. The reliability of the Adolescent Quality of Life instrument remained stable over time, and it appears to accurately assess and reflect changes in quality of life.
Key Words: Key words: quality of life adolescent cancer longitudinal data
References
- Borzekowski, D.L., & Rickert, V.I. (2001). Adolescent cybersurfing for health information: A new resource that crosses barriers. Archives of Pediatrics and Adolescent Medicine, 155, 813-817.[Abstract/Free Full Text]
- Candlelighters Childhood Cancer Foundation. ( 2007). Just for teens. Retrieved June 8, 2007, from http://www.candlelighters.org/justforteens.stm
- Havighurst, R.J. (1952). Developmental tasks and education. New York: David McKay.
- Jemal, A., Siegel, R., Ward, E., Murray, T., Xu, J., & Thun, M.J. (2007). Cancer statistics, 2007. CA: A Cancer Journal for Clinicians, 57, 43-66.[Abstract/Free Full Text]
- Levinson, D. (1978). The seasons of a man's life. New York: Ballantine.
- Louge, N. (2006). Adolescents and the Internet. ACT for Youth Center of Excellence: Research facts and findings. Retrieved June 2, 2007, from http://www.actforyouth.net/documents/Oct061.pdf
- Polit, D.F., & Beck, B.P. (2003). Nursing research: Principles and methods (7th ed.). Philadelphia: Lippincott, Williams & Wilkins.
- Varni, J.W., Burwinkle, T.M., Katz, E.R., Meeske, K., & Dickinson, P. (2002). The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life InventoryTM Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090-2106.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Varni, J.W., Katz, E.R., Seid, M., Quiggins, D.L.J., Friedman-Bender, A., & Castro, C.M. (1998). The Pediatric Cancer Quality of Life Inventory (PCQL), I: Instrument development, descriptive statistics, and cross-informant variance. Journal of Behavioral Medicine, 21, 179-204.[Medline]
[Order article via Infotrieve]
- Ward-Smith, P., Hamlin, J., Bartholomew, J., & Stegenga, K. (2007). Quality of life among adolescents with cancer. Journal of Pediatric Oncology Nursing, 24, 166-171.[Abstract/Free Full Text]
- Watson, M., Edwards, L., von Essen, L., Davidson, J., Day, R., & Pinkerton, R. (1999). Development of the Royal Marsden Hospital Paediatric Oncology Quality of Life Questionnaire. International Journal of Cancer, 12(Suppl.), 65-79.
Journal of Pediatric Oncology Nursing, Vol. 24, No. 6,
329-333 (2007)
DOI: 10.1177/1043454207308067

CiteULike Complore Connotea Del.icio.us Digg Reddit Technorati Twitter What's this?
This article has been cited by other articles:

|
 |

|
 |
 
J. Cassano, K. Nagel, and L. O'Mara
Talking With Others Who "Just Know": Perceptions of Adolescents With Cancer Who Participate in a Teen Group
Journal of Pediatric Oncology Nursing,
July 1, 2008;
25(4):
193 - 199.
[Abstract]
[PDF]
|
 |
|
|
|