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Family Management Style Framework: A New Tool With Potential to Assess Families Who Have Children With Brain Tumors

Center for Health Disparities Research at the University of Pennsylvania School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104-6096; Division of Oncology at The Children's Hospital of Philadelphia deatrick{at}nursing.upenn.edu

Annaka G. Thibodeaux, BSN, RN

Center for Health Disparities Research at the University of Pennsylvania School of Nursing, Philadelphia; Division of Oncology at The Children's Hospital of Philadelphia

Kim Mooney, MSN, CRNP

Center for Health Disparities Research at the University of Pennsylvania School of Nursing, Philadelphia; Division of Oncology at The Children's Hospital of Philadelphia

Cynthia Schmus, MSN, RN, CRNP

Rosanna Pollack, MSN, RN, CRNP

Barbara Hieb Davey, MSN, RN, CRNP

Division of Oncology at The Children's Hospital of Philadelphia

Qualitative studies of families with children who have cancer or other serious illnesses have found that families often come to view their child and their lives as normal. They manage illness-related demands using family management styles that sustain usual patterns of family and child functioning. Few studies have addressed the family management styles of families who express less satisfaction with family and child functioning or who are identified by health care professionals as having difficulty with family functioning. Such families are likely to be overrepresented among those whose children are being treated for brain tumors that entail extremely burdensome treatments as well as a range of unfavorable prognoses and long-term sequelae. In fact, little is known about how these families manage on a day-to-day basis and how the interdisciplinary team can best provide supportive care to optimize their functioning. The purpose of this article is to present the Family Management Styles Framework as a tool that is useful in both clinical practice and research for assessing families who have children with cancer, including those with brain tumors.

Key Words: family management style • brain tumors • children • families

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Journal of Pediatric Oncology Nursing, Vol. 23, No. 1, 19-27 (2006)
DOI: 10.1177/1043454205283574


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This Article Abstract Free Full Text (Free PDF) Free Alert me when this article is cited Alert me if a correction is posted Citation Map Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Add to Saved Citations Download to citation manager Request Permissions Request Reprints Add to My Marked Citations Citing Articles Citing Articles via HighWire Citing Articles via Google Scholar Citing Articles via Scopus Google Scholar Articles by Deatrick, J. A. Articles by Davey, B. H. Search for Related Content PubMed PubMed Citation Articles by Deatrick, J. A. Articles by Davey, B. H. Pubmed/NCBI databases Medline Plus Health Information Brain Cancer Childhood Brain Tumors Parenting Social Bookmarking                         What's this?