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Family Management Style and the Challenge of Moving From Conceptualization to Measurement
Kathleen A. Knafl, PhD, RN, FAAN
Oregon Health & Science University School of Nursing, 3755 SW US Veterans Hospital Road, Portland, OR 97239 knaflk{at}ohsu.edu
Janet A. Deatrick, PhD, RN, FAAN
Center for Health Disparities Research at the University of Pennsylvania School of Nursing, Philadelphia; Division of Oncology at The Children's Hospital of Philadelphia
This article describes the process of translating the Family Management Style (FMS) Framework into a measure of FMS Survey. The conceptual underpinnings of the FMS Survey are briefly described as are the steps for translating the FMS major components and dimensions into a questionnaire to assess the family response to a childhood chronic illness. Content validity testing has been completed on the FMS Survey. Future plans include full-scale field testing of remaining psychometric properties.
Key Words: family • instrument development • family management style
References
- Benoliel, J. Q. (1970). The developing diabetic identity: A study of family influence(Vol. 3). Boulder, CO: Western Interstate Commission on Higher Education.
- Benoliel, J. Q. (1975). Childhood diabetes: The commonplace in living becomes uncommon. In A. Strauss (Ed.), Chronic illness and the quality of life(pp. 89-98). St. Louis, MO: Mosby.
- Crocker, L., & Algina, J. (1986). Introduction to classical and modern test theory. Fort Worth, TX: Harcourt Brace Jovanovich.
- Darling, R. (1979). Families against society: A study of reactions to children with birth defects. Beverly Hills, CA: Sage.
- Davis, F. (1963). Passage through crisis: Polio victims and their families. Minneapolis: Bobbs-Merrill.
- Davison, G., Vogel, R., & Coffman, S. (1997). Think-aloud approaches to cognitive assessment and the articulated thoughts in simulated situations paradigm. Journal of Counseling and Clinical Psychology, 65, 950-958.[CrossRef][Medline]
[Order article via Infotrieve]
- Deatrick, J., Knafl, K., & Murphy-Moore, C. (1999). Clarifying the concept of normalization. Image: The Journal of Nursing Scholarship, 31(3), 209-214.
- Deatrick, J. A., Thibodeaux, A. G., Mooney, K., Schmus, C., Pollack, R., & Hieb Davey, B. (2005). Family Management Style Framework: A new tool with potential to assess families who have children with brain tumors. Journal of Pediatric Oncology Nursing, 23(1), 19-27.
- De Villis, R. F. (1991). Scale development: Theory and applications(Vol. 26). Newbury Park, CA: Sage.
- Dillman, D. A. (2000). Mail and internet surveys: The tailored design approach(2nd ed.). New York: John Wiley.
- Gilliss, C., & Knafl, K. (1999). Nursing care of families in nonnormative transitions: The state of the science and practice. In A. Hinshaw, S. Feetham, & J. Shaver (Eds.), Handbook for clinical nursing research. Thousand Oaks, CA: Sage.
- Grant, J., & Davis, L. (1997). Selection and use of content experts in instrument development. Research in Nursing & Health, 20, 269-274.
- Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1994). Final report: How families define and manage childhood chronic illness(Grant No. R01594). Bethesda, MD: National Institute of Nursing Research.
- Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management styles. Journal of Pediatric Nursing, 11(5), 315-326.[CrossRef][Medline]
[Order article via Infotrieve]
- Knafl, K., & Deatrick, J. (1990). Family management style: Concept analysis and development. Journal of Pediatric Nursing, 5(1), 4-14.[Medline]
[Order article via Infotrieve]
- Knafl, K., & Deatrick, J. (2003). Further refinement of the Family Management Style Framework. Journal of Family Nursing, 9, 232-256.[Abstract]
- Knafl, K., & Gilliss, C. (in press). Families and chronic illness: A synthesis of the literature. Journal of Family Nursing.
- Krulik, T. (1980). Successful ‘normalizing’ tactics of parents of chronically-ill children. Journal of Advanced Nursing, 5(6), 573-578.[Medline]
[Order article via Infotrieve]
- Lynn, M. R. (1986). Determination and quantification of content validity. Nursing Research, 35(6), 382-385.[Medline]
[Order article via Infotrieve]
- Mishel, M. H. (1998). Methodological studies: Instrument development. In P. Brink & M. Wood (Eds.), Advanced design in nursing research(2nd ed., pp. 235-282). Thousands Oaks, CA: Sage.
- Nunnally, J. C. (1994). Psychometric theory(3rd ed.). New York: McGraw-Hill.
- Patton, M. (1990). Qualitative evaluation and research methods. Newbury Park, CA: Sage.
- Sawin, K., & Harrigan, M. (1995). Measures of family functioning for research and practice. New York: Springer.
- Williamson, J., & Ranyard, J. (2000). A conversation-based process tracing method for use with naturalistic decisions: An evaluation study. British Journal of Psychology, 91, 203-221.
Journal of Pediatric Oncology Nursing, Vol. 23, No. 1,
12-18 (2006)
DOI: 10.1177/1043454205283585
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