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Transitioning Survivors of Central Nervous System Tumors: Challenges for Patients, Families, and Health Care Providers

ATP Five Plus Cancer Survivor Program, Division of Hematology/Oncology, Cincinnati Children's Hospital Medical Center, 3333 Burnett Avenue, MLC 11013, Cincinnati, OH 45229-3039, Debra.kent{at}cchmc.org

Elizabeth Gilger, MSN, RN, CPNP, CPON

Cincinnati Children’s Hospital Medical Center

Maureen Gallagher

Cincinnati Children’s Hospital Medical Center

Survivors of central nervous system tumors (SCNST) are a growing group of cancer survivors who require risk-based, long-term health care due to the chemotherapy, surgery, and radiation they have received.Although treatment strategies are being developed to reduce morbidity and mortality, ultimately this subgroup of pediatric cancer survivors often faces moderate to severe late effects of their treatment.As a result, they will need lifelong health care that includes risk-based health care due to cancer treatment exposures as well as primary adult health care, including primary and secondary preventative care. The best way to accomplish lifelong health care for SCNST as they enter adulthood is not clearly defined. In this article, the authors plan to (1) present an overview of the complexities of health care problems that make transition challenging for SCNST; (2) review the evolving transition literature; (3) explore the barriers to successful transition; (4) discuss methods to facilitate transition; (5) describe approaches, strategies, and models for survivorship care in SCNST; (6) present issues for consideration when transitioning SCNST; and (7) provide information on transition-related resources.

Key Words: transition • late effects • survivorship • models of care

Journal of Pediatric Oncology Nursing, Vol. 26, No. 5, 280-294 (2009)
DOI: 10.1177/1043454209343209


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