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Journal of Pediatric Oncology Nursing
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Parental Fears Following Their Child's Brain Tumor Diagnosis and Treatment

M. Anclair, BSc

Childhood Cancer Research Unit, Astrid Lindgren Childrens Hospital Q6:05, SE-171 76 Stockholm, Sweden, malin.anclair{at}ki.se

E. Hovén, BSc

B. Lannering, MD, PhD

Pediatric Oncology Division at Sahlgrenska University Hospital/Queen Silvia's Children's Hospital, Gothenburg

K.K. Boman, PhD

psychology, and head of a childhood cancer research group at Childhood Cancer Research, Unit Karolinska Institutet

The objective of this study is to portray the ill- ness-related threats experienced by parents of children after the diagnosis of central nervous system (CNS) tumor. Parents were asked to rate the extent to which they experienced a set of specific fears related to their child's brain tumor and its treatment. Outcomes for parents of CNS tumor patients (n = 82) were compared with those of reference parents of patients treated for acute lymphoblastic leukemia (n = 208). The fears about an illness recurrence and the late effects of treat- ment were most prominent among parents of CNS tumor patients. For 7 out of 11 kinds of fear, parents of CNS tumor patients expressed a stronger fear than the reference group. More than a quarter of the parents of children treated for CNS tumors feared a complete decline of the child. Parents of CNS tumor patients experience relatively heightened cancer related fears in several domains. The fear of devastating consequences felt by one fourth of parents signals the need of indi- vidualized psychological support and information at diagnosis and follow-up to facilitate parental coping with the posttreatment situation.

Key Words: childhood cancer • central nervous system tumors • late effects • parental fears • survivors

This version was published on March 1, 2009

Journal of Pediatric Oncology Nursing, Vol. 26, No. 2, 68-74 (2009)
DOI: 10.1177/1043454208323912
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