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Journal of Pediatric Oncology Nursing
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Health-Related Quality of Life Relates to School Attendance in Children on Treatment for Cancer

Margareta af Sandeberg, MSc, RN

Department of Pediatric Hematology and Oncology, Astrid Lindgrens Children's Hospital, Karolinska University Hospital, Stockholm, Sweden, margareta.afsandeberg{at}karolinska.se

Eva Johansson, PhD

Department of Medicine, Karolinska University Hospital and Institutet, Stockholm, Sweden

Olle Björk, MD, PhD

Karolinska Institutet, Stockholm, Sweden

Lena Wettergren, PhD

The aims of this study are to follow health-related quality of life (HRQOL), school attendance, and social interaction with friends in children with cancer and to explore potential relationships between HRQOL and school attendance. The study also describes self-reported reasons for not attending school and not meeting friends. During a 2-year period, all schoolchildren in Sweden starting treatment for cancer were invited to participate in the study. Participants (N = 101) were assessed 3 times during the first 5 months of treatment using 2 questionnaires: DISABKIDS Chronic Generic Module (DCGM-37) and a study-specific questionnaire. The results indicate a diminished HRQOL that remained stable over the study period, with girls rating worse HRQOL compared with boys. School attendance significantly increased over time, and approximately half of the children attended school 5 months after start of treatment. Self-reported HRQOL was positively correlated to days of school attendance. The results emphasize the importance of psychosocial care and nursing for children diagnosed with cancer, especially for girls. Research to further explore gender differences in HRQOL among children diagnosed for cancer is recommended.

Key Words: childhood cancer • health-related quality of life • school • friends • social interaction

This version was published on September 1, 2008

Journal of Pediatric Oncology Nursing, Vol. 25, No. 5, 265-274 (2008)
DOI: 10.1177/1043454208321119


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