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Determining the Understandability and Acceptability of an Oral Mucositis Daily Questionnaire

Dip Cancer Nursing, is at CHES, Hospital for Sick Children, Toronto, Ontario, Canada, deborah.tomlinson{at}sickkids.ca

John J. Isitt, MS

Thousand Oaks, California

Richard L. Barron, MS

Thousand Oaks, California

John Doyle, MD

Section of Blood and Marrow Transplant, Hospital for Sick Children, Toronto

Peter Judd, MD

Pediatric Dentistry, Hospital for Sick Children, Toronto

Adam Gassas, MBChB, MSc

Section of Blood and Marrow Transplant, Division of Hematology/Oncology, Hospital for Sick Children, Toronto

Ahmed Naqvi, MD

Inpatient Department, Division of Hematology/Oncology, Hospital for Sick Children, Toronto

Lillian Sung, PhD, MD

CHES, Hospital for Sick Children, Toronto

Oral mucositis research in children receiving anticancer therapy has been impeded by the lack of an acceptable, appropriate assessment scale. Some scales attempt to measure subjective symptoms associated with mucositis such as pain and difficulty swallowing. These types of patient-reported outcomes are gaining prominence in clinical trials because they capture the perspective of the patients in whom the intervention is designed to benefit. In mucositis research, very few patient-reported outcome measures have been developed. The aim of this study was to determine whether an adaptation of the adult-validated Oral Mucositis Daily Questionnaire is understandable and acceptable for use in the pediatric oncology/hematology population. Twelve subjects were asked to rate their opinion of understandability and acceptability of the adapted Oral Mucositis Daily Questionnaire. As a result of their comments, minor changes were made. Evaluation of the psychometric properties of this instrument can now be performed.

Key Words: Key words: oral mucositis • scales • pretest

This version was published on April 1, 2008

Journal of Pediatric Oncology Nursing, Vol. 25, No. 2, 107-111 (2008)
DOI: 10.1177/1043454208314458


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