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Journal of Pediatric Oncology Nursing
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A Multidisciplinary Model of Care for Childhood Cancer Survivors With Complex Medical Needs

Claire A. Carlson, BSN, RN

Cancer Survivorship Program at The Children's Hospital of Philadelphia, carlsoncl{at}email.chop.edu

Wendy L. Hobbie, MSN, RN, CRNP

Cancer Survivorship Program at The Children's Hospital of Philadelphia

Melinda Brogna, BSN, RN

Oncology Outpatient Clinic at The Children's Hospital of Philadelphia

Jill P. Ginsberg, MD

Division of Oncology at The Children's Hospital of Philadelphia

Long-term survival for children with cancer is often achieved at a considerable cost in terms of medical and psychological sequelae. Although many survivors are well and require only routine follow-up and surveillance, a cohort of survivors require comprehensive management of complex, chronic medical issues by multiple subspecialists. For these survivors, care delivered within the context of an annual visit to a traditional hospital—based late effects clinic or by a primary care physician in the community is often not adequate. A specialized clinic was implemented at The Children's Hospital of Philadelphia that crosses disciplines and provides same-day, same-clinic access to oncology/survivorship, endocrinology, pulmonology, cardiology, nutrition, and psychology. This multidisciplinary approach supports clinical efficiency and fosters seamless patient-centered care both for patients with identified late effects and for those with the highest risk for problems because of intense treatment exposures. The model is described with a focus on clinic structure/process, clinical outcomes, and benefits to survivor, health care provider, and institution. The diverse roles for nursing within this model are highlighted.

Key Words: childhood cancer • late effects • survivorship • long-term follow-up • model of care

Journal of Pediatric Oncology Nursing, Vol. 25, No. 1, 7-13 (2008)
DOI: 10.1177/1043454207311741


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K. Ruccione
The Legacy of Pediatric Oncology Nursing in Advancing Survivorship Research and Clinical Care
Journal of Pediatric Oncology Nursing, September 1, 2009; 26(5): 255 - 265.
[Abstract] [PDF]



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