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Journal of Pediatric Oncology Nursing
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Understanding the Supportive Care Needs of Parents of Children With Cancer: An Approach to Local Needs Assessment

Laura M. J. Kerr, MSc, RN, CON C

Queen's University, School of Nursing, Kingston, Ontario, kerrl{at}post.queensu.ca

Margaret B. Harrison, PhD, RN

Queen's Joanna Briggs Collaboration (QJBC) at Queen's University, School of Nursing, Kingston, Ontario

Jennifer Medves, PhD, RN

Queen's University, School of Nursing, Kingston, Ontario

Joan E. Tranmer, PhD, RN

Queen's University, School of Nursing, Kingston, Ontario

Margaret I. Fitch, PhD, RN

Toronto-Sunnybrook Regional Cancer Centre, Toronto, Ontario

The objective of this study was to conduct an assessment of supportive care needs from the perspective of parents of children diagnosed with cancer within an urban-rural region in Eastern Ontario, Canada. Guided by a conceptual framework for supportive care, the exploratory, mixed-method study used a standard needs survey and semistructured interviews. Fifteen parents completed (75% response rate) the survey, and 3 parents participated as key informants in the follow-up interview. Parents reported needs in all 6 of the need categories outlined within the Supportive Care Needs Framework. The proportion of parents expressing a need ranged from 23% to 39%. Dealing with the fear of their child's cancer spreading was frequently identified by parents. Emotional and informational needs were the 2 most frequently acknowledged categories of need. With further refinement, the use of the conceptual framework will provide a methodology for planning care based on the individual needs identified by parents of children with cancer.

Key Words: Key words: supportive care • needs assessment • cancer • parents/family

Journal of Pediatric Oncology Nursing, Vol. 24, No. 5, 279-293 (2007)
DOI: 10.1177/1043454207304907
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This article has been cited by other articles:


Home page
 Journal of Family NursingHome page
H. Maijala, T. Luukkaala, and P. Astedt-Kurki
Measuring Parents' Perceptions of Care: Psychometric Development of a Research Instrument
Journal of Family Nursing, August 1, 2009; 15(3): 343 - 359.
[Abstract] [PDF]


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