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An Investigation Into Parent Perceptions of the Needs of Siblings of Children With Cancer

Haematology/Oncology Total Care Unit, Princess Margaret Hospital, Perth, Western Australia, ranita.sidhu{at}health.wa.gov.au

Anne Passmore, PhD

School of Occupational Therapy, Curtin University of Technology WA, Perth, Western Australia

David Baker, MBBS, FRACP, FRCPA

department in the Haematology/Oncology Total Care Unit, Princess Margaret Hospital, Perth, Western Australia

Although more is understood about childhood cancer’s impact on the often forgotten siblings in the family, developing empirically tested interventions that support positive health outcomes is only just emerging. As family support is of key importance in sibling adjustment, further knowledge about their needs is crucial to the development of effective interventions. This investigation focused on examining parental perceptions regarding the concerns and issues for siblings of children with cancer and explored what support is helpful. Focus group methods were used to gather the data with probe questions developed from the literature and from clinical experience. Emergent topics generated were further analyzed using content analysis with 3 major topics identified: the universality of losses arising from the illness experience, behavioral challenges and adaptation, and parent-sibling communication. Parents also discussed helpful interventions. These are described and discussed in relation to the literature. The information obtained will contribute to developing interventions for siblings, specifically to produce a protocol for a therapeutic peer-support camp.

Key Words: siblings • childhood cancer • psychosocial • parent perceptions

Journal of Pediatric Oncology Nursing, Vol. 22, No. 5, 276-287 (2005)
DOI: 10.1177/1043454205278480


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