This Article Full Text (PDF) References Alert me when this article is cited Alert me if a correction is posted Citation Map Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Add to Saved Citations Download to citation manager Request Permissions Request Reprints Add to My Marked Citations Citing Articles Citing Articles via HighWire Citing Articles via Google Scholar Citing Articles via Scopus Google Scholar Articles by Deatrick, J. A. Articles by Moore, C. Search for Related Content PubMed PubMed Citation Articles by Deatrick, J. A. Articles by Moore, C. Pubmed/NCBI databases Medline Plus Health Information Cancer Social Bookmarking                         What's this?

Parents' Views of their Children's Participation in Phase I Oncology Clinical Trials

Denise B. Angst, DNSc

Carol Moore, MSN, CRNP

Data from two descriptive studies regarding decision making in pediatric oncol ogy were analyzed using qualitative, secondary analysis techniques to describe how parents view their children's participation in phase I oncology clinical trials. A conceptual framework on family management styles (defining, managing, and consequence themes) was used as an organizational framework to analyze the available parental data. Parents defined or viewed their situation in relationship to their choices and expectations, health care provider expectations, children's illness situation, and family and personal situations. These themes are contrasted to clinical, parental, and ethical perspectives from the literature to make recom mendations for further research emphasizing the concerns of families.

Journal of Pediatric Oncology Nursing, Vol. 19, No. 4, 114-121 (2002)
DOI: 10.1177/104345420201900402


CiteULike    Complore    Connotea    Del.icio.us    Digg    Reddit    Technorati    Twitter    What's this?

This article has been cited by other articles:

				W. J. Haylett Ethical Considerations in Pediatric Oncology Phase I Clinical Trials According to The Belmont Report Journal of Pediatric Oncology Nursing, March 1, 2009; 26(2): 107 - 112. [Abstract] [PDF]

				A. Chang An Exploratory Survey of Nurses' Perceptions of Phase I Clinical Trials in Pediatric Oncology Journal of Pediatric Oncology Nursing, February 1, 2008; 25(1): 14 - 23. [Abstract] [PDF]

				D. Wendler and T. Jenkins Children's and Their Parents' Views on Facing Research Risks for the Benefit of Others Arch Pediatr Adolesc Med, January 1, 2008; 162(1): 9 - 14. [Abstract] [Full Text] [PDF]

				M. Bluebond-Langner, J. B. Belasco, A. Goldman, and C. Belasco Understanding Parents' Approaches to Care and Treatment of Children With Cancer When Standard Therapy Has Failed J. Clin. Oncol., June 10, 2007; 25(17): 2414 - 2419. [Abstract] [Full Text] [PDF]

				A. Chang Nurses' Perceptions of Phase I Clinical Trials in Pediatric Oncology: A Review of the Literature Journal of Pediatric Oncology Nursing, November 1, 2004; 21(6): 343 - 349. [Abstract] [PDF]

				C. M. Ulrich, C. Grady, and D. Wendler Palliative Care: A Supportive Adjunct to Pediatric Phase I Clinical Trials for Anticancer Agents? Pediatrics, September 1, 2004; 114(3): 852 - 855. [Full Text] [PDF]

				OTHER ARTICLES NOTED (Nov 01 to 18 Oct 02) Evid. Based Nurs., January 1, 2003; 6(1): e1 - 1. [Full Text] [PDF]